Rare Disease Day took place on an appropriately rare day this year: February 29.
Rare diseases can be difficult to find and diagnose, let alone treat. While they may have low incidences, rare diseases are not rare: over 7000 have been identified to date and approximately 300 million people worldwide are living with one.
Here at MEDUCOM, we “showed our rare” by finding, researching and spreading awareness of rare diseases. Unicorns – the unofficial symbol of rare disease awareness – were hidden throughout the office and contained the name of a rare disease. Everyone searched for their unicorn and researched a fact about that genetic or infectious disease (e.g. origin, symptoms, prevalence), later sharing the information with the team.
The diseases we found represent only a fraction of all rare diseases, highlighting how important it is to spread awareness of the rare disease community and show our support.
Rare is many. Rare is strong. Rare is proud!